Epilepsy management documents

This pack should be given to every child who presents with a first afebrile seizure. It contains a checklist of what to cover in first seizure presentations before a child is discharged home, safety information, seizure first aid, an event record for families to document any additional seizures, and a PENNSW flyer. 

This pack should be given to every child with a new diagnosis of epilepsy. It contains a checklist of what to cover in newly diagnosed epilepsy, safety information, a First Aid Seizure Management Plan (to be completed by the Doctor for childcare, preschool, school, or respite centres), an Emergency Seizure Medication Plan (to be completed by the Doctor for children who require emergency seizure medication such as Midazolam), contact details for CPR courses (especially for families of children who require emergency seizure medications), an event diary for families to keep track of seizures, and a PENNSW flyer.  

This form is for patients/parents to enhance knowledge about their own diagnosis. It can be completed by patients/parents with the assistance of the treating clinician.

This form is for patients/parents to document the nature of any future paroxysmal events in detail. 

This form is for patients/parents to document the frequency of events.

NSW Clinical Practice Guidelines, Infants and children: Acute Management of Seizures (algorithm pg 4).

The downloadable document includes a list of organisations who can provide accredited CPR training courses.  The Children's Hospital at Westmead has also developed a free online program (CPR Training for Parents) to teach the steps involved in Cardio-Pulmonary Resuscitation (CPR) for a baby (aged less than 12 months) or a child (aged over one year). The online resource can be accessed by clicking here:

• Online CPR Training for Parents

The Mental Health Youth Services Directory for patients and families provides contact details for a range of mental health services available in Greater Sydney and regional NSW. It also provides links to electronic resources and e-mental health programmes as well as phone numbers for agencies that provide support via telephone. The list is not exhaustive but should serve as a guide on resources available.